Friday, March 25, 2016

I Would Rather be Working

I had an appointment the other day that centered on my health. I was asked what medical conditions, "with specificity," made it so I could not work at least part-time. Four typed pages in Arial #10 font gave very specific explanations of health problems I have. The response I received was along the lines of, "How could anyone expect you to work with all this?" 

Source: Classroom Clipart
Like many people with a chronic condition, it seems like a new health problem comes along all too regularly. It would be awesome to get through one year with nothing new added to the list. I would much rather be working. 

I have met a number of people who have had to quit working due to health conditions. Without fail, each would rather be working than have whatever chronic illness they are dealing with. 

Median 2014 income for a woman my age was $41,080 per year. The disability benefits I receive is currently less than $12,000 per year. I would be crazy to want to be disabled.


I do not understand why people keep asking me if I cannot work at least part-time. I have been to more doctors and health practitioners for evaluation in the last few years than I probably have dealt with before being diagnosed with fibromyalgia. And that is the total for 45 years versus the last three years. 

I have been poked, prodded, had MRI's, a C-T scan, and a pulmonary function test (PFT). Pictures are taken of my retinas yearly. I see my doctor for follow-ups many times each year, plus more visits for new problems. I have had my head examined by several doctors and therapists - they all come up with the same diagnoses. 

Two government agencies, plus my doctors, have all concluded that I am 100% disabled. So why is it so hard for friends and relatives to accept what I have had to come to terms with. 

I would much rather be working than be disabled. I would much rather be using my hard-earned education being an accountant than trying to figure out how to balance my budget. I would much rather make a presentation in front of a room full of strangers than undergo another medical test.

I would bet that 99.9% of all disabled people would rather be working. 

-Amelia